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Panel session on global patient registry status updates at World Orphan Drug Congress USA 2013
Panel on building a patient database as commercial framework at World Orphan Drug Congress USA 2013
The NIH on infrastructure start-up for a global patient registry at World Orphan Drug Congress USA
NIH, EURORDIS and more on globalizing orphan drug access at World Orphan Drug Congress USA 2013
Claudia Hirawat of PTC Therapeutics on clinical paths at World Orphan Drug Congress USA 2013
Rare disease clinical trials with Shire, Novartis and more at World Orphan Drug Congress USA 2013
Chris Garabedian of Sarepta on personalized medicine at World Orphan Drug Congress USA 13
An EU single orphan drug market with SOBI, EURORDIS and more at World Orphan Drug Congress USA 2013
Panel session Orphan drug licensing and M&A trends Learnings from 2013 and what to expect in 2014
Rare Disease Panel
Phelan-McDermid Syndrome Foundation patient testimony at World Orphan Drug Congress USA
Andrew Callos of Pfizer on building a rare disease franchise at World Orphan Drug Congress USA 2013
